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However, we are optimistic that the effects will last much longer.”I’ve seen a video of a young girl who had this operation and she is running, jumping and twisting six weeks after surgery. If Grace could do that, it would be amazing.”Grace started showing symptoms for her condition in 2013 and was diagnosed a year later.”She hasn’t done PE since a year passed Christmas. Her pain and tiredness goes hand in hand, changing from her school uniform into her PE kit is too exhausting,” added Tanya.Mum’s world rocked as mole she couldn’t even see turned out to be cancerousGrace and Tanya have already been to Germany to visit Dr Per Trobisch, who examined the teenager and has agreed to operate.”Dr Trobisch will operate free of charge but we have to find the money for hospital fees, staff wages and so on,” added Tanya, a civil servant.”The doctor said he is confident he can operate and Grace will be able to lead a normal life, but time is of the essence.”Tanya said any extra money raised would be used to help other youngsters to receive similar treatment.The alternative in the UK is spinal fusion, which involves having metal rods inserted into the spine and means Grace would have her mobility severely limited as an adult..

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